Adam Smith 

Associate Project Director, York Health Economics Consortium Ltd

Author of: What are PROMs?

Adam_Smith

Adam has a PhD in psychometrics from the University of Leeds, and is a Chartered Psychologist and an Associate Fellow of the British Psychological Society. He is an Associate Project Director for the York Health Economics Consortium’s (YHEC) Outcomes Research workstream focusing primarily on the quantitative aspects of PROMs. Adam’s work with PROMs has ranged from designing and developing instruments, including electronic patient-reported outcome measures to producing item banks. He has considerable experience in statistics, quantitative analysis and methodology, including modern psychometrics, such as Rasch Models, latent growth models, and reliability generalisation. Prior to joining YHEC Adam was a lecturer in quantitative methods at the University of Leeds and a principal scientist at Cancer Research UK. He is the statistical editor for the British Journal of Oral and Maxillofacial Surgery, and an associate editor for the journal Quality of Life Research.

Summary: What are PROMs?

  • Patient reported outcomes (PROs) are evaluations made directly by patients concerning their health, symptoms, level of functioning, satisfaction with treatment and so on, without any input from their family, carers or healthcare professionals.
  • Patient-reported outcome measures (PROMs) are the tools used to capture PRO information, usually in the form of questionnaires. There are different types of PROMs, including generic instruments aimed at different patient populations, as well as disease-specific and treatment-specific measures.
  • PROMs are commonly used in clinical trials and are increasingly being used in clinical research and practice; for instance, to evaluate the impact and effect of novel drug treatments, monitor symptoms, and facilitate communication between patients and their healthcare professionals.
  • Reimbursement agencies such as the UK’s National Institute for Health and Care Excellence utilise PROMs for the cost effectiveness analysis of new drugs and medical interventions.
  • Bodies such as the US Food and Drug Administration and the European Medicines Agency have set new benchmarks for the properties required for PROMs when used to demonstrate patient benefit in clinical trials.
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